Chronic Kidney Disease Websites

List of Chronic Kidney Disease Websites

2005-03-21T15:32:00.000-06:00

This is a list of sites that have useful information about chronic kidney disease. If you know of other chronic kidney disease sites please let me know by clicking "comments" below.

Polycystic Kidney Disease (PKD) Foundation

National Kidney and Urologic Diseases Information Clearinghouse

National Kidney Foundation (NKF) - Kidney Learning System

Life Options

Kidney School™

Home Dialysis Central

healthfinder®

American Association of Kidney Patients (AAKP)

Polycystic Kidney Disease (PKD) Foundation

2005-03-21T15:22:00.000-06:00

The PKD Foundation was founded in 1982 thanks to the care, interest and actions of two men. Joseph H. Bruening was in search of hope; encouragement and information regarding PKD after both his wife and daughter had been diagnosed with the disease. He read a newspaper article about a doctor named Jared J. Grantham who was doing PKD research in Kansas City. Joseph and Jared pooled their time, talent, and resources to establish the PKD Foundation - committed to finding a treatment and cure for PKD.

The PKD Foundation site is one of many tools used to help get basic information to the public, while also maximizing the opportunity to raise awareness and funds for research. The primary purpose of the web site is to serve as a "brochure online" that allows individuals to learn the basics about PKD, the Foundation and its focus on research efforts. It also serves as a resource to find support groups in major cities across the country, as well as related health links on the Internet (though not maintained, operated or endorsed by the PKD Foundation). Medical professionals may also learn about the grant application process and the types of studies that have been funded so they might become involved in the fight to END PKD.

National Kidney and Urologic Diseases Information Clearinghouse

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The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is an information dissemination service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health (NIH), one of eight health agencies of the Public Health Service, which is under the U.S. Department of Health and Human Services.

NKUDIC was established in 1987 to increase knowledge and understanding about diseases of the kidneys and urologic system among people with these conditions and their families, health care professionals, and the general public. To carry out this mission, NKUDIC works closely with a coordinating panel of representatives from Federal agencies; voluntary organizations on the national level; professional groups; and State health departments to identify and respond to informational needs about kidney and urologic diseases.

National Kidney Foundation (NKF) - Kidney Learning System

2005-03-21T15:12:00.000-06:00

The national kidney foundation's kidney learning system (kls)tm provides comprehensive education along the continuum of chronic kidney disease. kls is information you need from people you trust. see what's available for you.

Life Options

2005-03-21T15:07:00.000-06:00

Life Options is a program of research, research-based education, and outreach founded in 1993 to help people live long and live well with kidney disease. A national panel of doctors, researchers, patients, nurses, social workers, dietitians, and ESRD Network directors reviews all Life Options materials and helps guide research.

Kidney School™

2005-03-21T15:04:00.000-06:00

Kidney School will help you learn to take an active role in your healthcare decision-making. Research suggests that kidney patients who become active partners in their care are more likely to live long and live well.

Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment, adjust to kidney disease, make good medical choices, and live as fully as possible. You decide which modules to visit and when––so what you learn is entirely up to you.

Home Dialysis Central

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Visit Home Dialysis Central to learn about daily, night time, or conventional home hemodialysis. See home dialysis equipment, and find clinics that support home treatments. Talk to other home dialysis patients, read patient stories, and locate helpful tools.

healthfinder®

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healthfinder® is an award-winning Federal Web site for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder® has been recognized as a key resource for finding the best government and nonprofit health and human services information on the Internet. healthfinder® links to carefully selected information and Web sites from over 1,500 health-related organizations.

American Association of Kidney Patients (AAKP)

2005-03-21T14:40:00.000-06:00

Founded 35 years ago, the American Association of Kidney Patients (AAKP) exists to serve the needs, interests and welfare of all kidney patients and their families. Its mission is to improve the lives of fellow kidney patients and their families by helping them to deal with the physical, emotional and social impact of kidney disease.